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Ian Wolfe Schiro, born
February 10,
1999 .
He was diagnosed at 13 months of age after a mom at our daycare pointed out some "features" of his that resembled
Williams
Syndrome when she heard me talking to the daycare provider about
Ian's reflux, delays and heart murmur. We went to a geneticist and
it was confirmed with a FISH test.
His heart murmur was actually stenosis. Now three years old, Ian has had mild symptoms with a recent discovery of an increased narrowing aorta which we will monitor more closely. He outgrew his reflux and just had a double hernia repair.
He recently entered our town's early intervention pre-school and is doing well. Ian is a very warm, funny, sensitive, loving little boy whose little arms around your neck can make all your problems go away.
I hope he will always know and feel how much he is loved, and I hope he will be as happy as he makes everyone else!
I won't say it has been easy, and our journey is far from over, but he has an unbreakable spirit that touches everyone he meets.
"Elmo's on?" is his favorite question and he loves his dog, Chance and his three parrots -- Earl, Jose and Kiki.
He was diagnosed at 13 months of age after a mom at our daycare pointed out some "features" of his that resembled
His heart murmur was actually stenosis. Now three years old, Ian has had mild symptoms with a recent discovery of an increased narrowing aorta which we will monitor more closely. He outgrew his reflux and just had a double hernia repair.
He recently entered our town's early intervention pre-school and is doing well. Ian is a very warm, funny, sensitive, loving little boy whose little arms around your neck can make all your problems go away.
I hope he will always know and feel how much he is loved, and I hope he will be as happy as he makes everyone else!
I won't say it has been easy, and our journey is far from over, but he has an unbreakable spirit that touches everyone he meets.
"Elmo's on?" is his favorite question and he loves his dog, Chance and his three parrots -- Earl, Jose and Kiki.
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