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Williams Syndrome:

Related Links

If you wish to recommend a link, please send the title of the site and the address (URL) (e.g. www.newsites.com) to williamssyndrome@insightbb.com. 

Index to Links

bulletWilliams Syndrome Support Groups
bulletFamily WS Sites
bulletMedical and Genetics
bulletWS Researchers
bulletMusic Therapy
bullet Disability Links

Family WS Sites

bulletMeghan Sings! -- Meghan Finn's web site.  (Order her new CD or schedule Meghan and her Mom, Liz Costello, for your next fundraising event.)
bullet~ Trent William Johnson ~ Memorial Web Site
bulletThe Moylan Family Web Page - http://homepage.eircom.net/~moylanfamily
bulletRachel Rowe's Personal Home Page - http://home.san.rr.com/krowe/
bulletWILLIAMS-FRANCE/EST- http://perso.wanadoo.fr/syndrome_de_williams
Jean-Pierre & Marielle Massel and daughter, Meghan
email: jean-pierre.massel@wanadoo.fr

bulletHorst Romm's Williams-Beuren Syndrome Home Page - http://home.t-online.de/home/horst.romm/homepage.htm
email: Horst.Romm@t-online.de

bulletThe Sanvito Family Williams Syndrome Site (in Italian) http://www.wsfs.it
email: klsanvit@tin.it

bullet A William's Mind Traveler -- Trey Johnson's Web Site
bullet Vickie Mendoza's Williams Syndrome Page for her daughter, Mary
bullet Sereena Celeste Beech's Williams Syndrome Site
bulletTyler Joseph's Williams Syndrome-PDD Page
bulletPenny Perez's Blog chronicling life with her Williams Syndrome son, Keith Alan - www.PennyPerez.blogspot.com

 

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Medical and Genetics

bullet American Academy of Pediatrics - Policy Statement for Williams Syndrome
bullet Genetics & Cardiovascular Summary of WS
bullet Felix W. Frueh's Genetics home page
bullet GeneClinics - "GeneClinics" Medical Genetics Knowledge Base
bullet Healthfinder - healthfinder™ is a gateway consumer health information web site from the United States government.
bulletThe Hyperacusis Network
bullet Rare Genetic Diseases in Children

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Music Therapy

bulletAmerican Music Therapy Association - AMTA was founded in 1998, its purpose is the progressive development of the therapeutic use of music in rehabilitation, special education, and community settings.
bullet Coast Music Therapy - Music therapy is a professional health discipline that uses music as a therapeutic stimulus to achieve non-musical treatment goals. Research documents that many children with special needs exhibit a high level of preference for music and show processing capabilities for musical stimuli that support deficits in related non-music areas. In this way, music can be used as a motivator and alternate learning avenue for select skills that may be more difficult for an individual to achieve using typical non-music instructional approaches.  Music-based approaches used by music therapists include singing, rhythm activities, movement, and instrument playing designed to target developmental or educational goals. Services include direct therapy or consultation. Visit www.coastmusictherapy.com for more information.
bulletRocky Mountain Therapy Connections - We are a music therapy agency based in Denver, Colorado. Our therapists work with children and adults with a variety of disabilites (including William's syndrome).

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Disability Links

bullet Association of Retarded Citizens (Arc) - Excellent inclusive Home Page
bulletBest Buddies International, Inc. - Best Buddies is a nonprofit organization  dedicated to enhancing the lives of people with mental retardation by providing opportunities for socialization and employment.
bullet Disability information
bulletExceptional Parent Library   - "Information That Matters from People Who Care" in any specific special need area
bulletExceptional Parent Magazine - Exceptional Parent Magazine's online resource.  Continuing 30 award winning years of providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities and the professionals who work with them.
bulletLinks to Disability Resources
bullet Listing of Medicaid, MR/DD Waiver & Other Assistance Programs
bulletNational Academy for Child Development
bulletNational Center to Improve Practice (NCIP) - promotes the effective use of technology to enhance educational outcomes for students with sensory, cognitive, physical and social/emotional disabilities.
bullet Savant Syndrome Web Site

 

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Please send mail to williamssyndrome@insightbb.com with questions or comments about this web site.
For additional information about Williams syndrome, please send an e-mail to hlenhoff@uci.edu.
For contact with other Williams syndrome families --
In the USA: please send e-mail to info@williams-syndrome.org
Outside the USA: please visit our International Williams Syndrome Support Groups page for contact information.
Copyright © 2002 Williams Syndrome Foundation
Last modified: April 15, 2007