Support Organizations -
International
 Argentina
Australia
Belgium
Canada
Denmark
Finland
France
Germany
Hungary
Ireland
Israel
Italy
Japan
New Zealand
Norway
Republic of South Africa
Romania
RUSSIA
Spain
Sweden
UK
If you know of any other Williams syndrome
support organizations please
email me
with all the details.
The following link, from the WSF-UK, may contain
contact information for Williams Syndrome Federations &
Associations not listed here:
http://www.williams-syndrome.org.uk/contact/contact.html.
The aAsW is a non profit organization dedicated
to support people affected by the syndrome and their
families.
As far as we know, this association is the first in Latin
America, and it has been recognized by the government of
Buenos Aires province under the register number 2233
e/t, as a public welfare entity.
Alejandro Monteverde
President aAsW
Web site: http://www.welcome.to/aasw. (en
español)
e-mail:
aasw@bigfoot.com
Secretary
Janine Wan
43 Naroo Street
Balwyn Vic 3103
Phone (03) 9859 4450
email
jwan@enternet.com.au
Web page
http://home.vicnet.net.au/~wsfsg/
Williams Syndrome of (SA) Inc.
PO Box 247
Salisbury SA 5108
e-mail:
wsaofsa@bigpond.com
32 Selwyn Street, Paddington
New South Wales 2021 Australia
Tel: 02 9332 1361
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Williams Syndrome Belgian french speaking
Association
Rue de la limite, 66
1030 Brussels
Belgium
Website:
http://www.syndromedewilliams.be
E-Mail:
info@syndromedewilliams.be
Our Association is working towards the following
aims :
- to promote the exchange of information
relating to the Williams Syndrome
- to organize meetings between parents and
professionals faced with this handicap
- to defend children's interests with regards
to the syndrome and its specificities
- to supply the documentation centre with the
literature about medical discoveries and current
researches
- to collaborate with medical and pedagogical
research teams
- to participate in conferences and study days
concerning the syndrome
- to get in touch with similar associations
located in other countries
vzw Williams-Beuren
syndroom
Tervuursesteenweg 30, B-3001 Heverlee, België
Tel: (+32)(0) 16 22 42 32 of (+32)(0) 15 61 73 31
Fax: (+32)(0) 16 22 42 32
Bankrekening: Fortis 001-2177522-45
Website:
http://www.williamsbeuren.be/
Email:
wbs@advalvas.be
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Jaimie & Gregg Tinling
Co-Chairs CAWS
(403) 855-1115
cawschairs@shaw.ca
Other Provincial Director Addresses are listed
on the CAWS home page at http://www.caws-can.org
- The association evolved from a parent
support group in Vancouver, B.C. in 1984. It exists to
provide support and assistance to families with a child
affected by Williams Syndrome, a network and "family"
for adults with Williams syndrome and to actively
support research into educational, behavioural, social
and medical aspects of the syndrome. The association's
other goals are to locate those families with an
individual with Ws who are unaware of the association
and to become a visible group in the medical,
scientific, educational and professional communities in
order to facilitate referrals for these newly diagnosed
individuals. These combined goals will improve methods
of social integration and education of individuals with
Ws.
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The new site of the French Federation of Williams
syndrome.
Williams-France is a 1901 law association non-profit and
represents more than 10 associations and regional
chapters.
Williams-France is adhering to the FEWS (European
Federation of Williams syndrome).
www.williams-france.org
VIGERIE Patrick
Président Williams-France
04 73 87 25 55
Fédération
Française du syndrome de Williams
8 rue du Faubourg Poissonnière
75010 PARIS
contact-france@williams-france.org
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Contact :
jean-pierre.massel@wanadoo.fr
Our association was born in January 1998 and cover the
north-east of
France. We are now 6 regional association in France. We
organise annual
parents meetings and help parents to enter in relation with
other families
to share experience about education, healthcare... We have
currently 22
representatives of WS children as members.
Regional Associations in France:
-
Le Syndrome de Williams et Beuren
http://perso.wanadoo.fr/syndrome_de_williams/html/assos.htm
http://www.fraternet.org/williams/
-
ASW Ile de France (Paris and suburb)
BP 50, 78362 MONTESSON CEDEX
Tel: +33 (0) 1 39 52 06 75
209 Rue du Commandant Abadie
76600 LA HAVRE
Tel: +33 (0)2 35 45 71 28
-
ASW Sud-Est (covering Lyon-Tolouse-Nice)
16, rue Teresa Maxence Chaix
13200 Aries, France
Tel: 04 90 85 18 99
Email:
helene.monti@wanadoo.fr
-
ASWB du Rhone-Alpes (in French)
http://perso.wanadoo.Fr/aswbrhonealpes
Forum/Message Board:
http://aswb-rhone-alpes.forumactif.com/
-
Association Autour des Williams (in
French)
www.bloc-note.org
Email : benveniste.pascal@eurofactor-network.com
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Regionalgruppe Bayern-Süd im Williams-Beuren-Syndrom
Bundesverband
Homepage:
http://www.w-b-s.de
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Dr. Pogány Gábor
MWSzT, (ÉFOÉSZ Budapesti Szervezete);
Hernád u. 27
H-1078, Budapest, Hungary .
e-mail
pogany@korb1.sote.hu
web site:
www.williams.ngo.hu
Telephone: 36 1 326 7492 (English/French)
36 1 266 1639/2890 (English/Spanish)
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c/o Ann Breen
13 Kilgarve Park, Ballinasloe,
Co. Galway, Ireland
Phone +353 905 43247
Web Site:
http://www.wsai.ie/toppage1.htm
The Association provides information and support
to families with a WS member, and tries to promote
awareness of WS amongst the medical profession in Ireland.
There are currently about 40 member families.
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Louis Pasteur 5
Jaffo, 6803
Israel
Tel: 03-6830538
Contact: Henriette Allon
The Association was
founded in 1994 and presently supports approximately 30
families. An annual convention is one of its main
activities.
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Associazione Italiana Sindrome di Williams ASW
(Italy)
- The Associazione Sindrome Williams (ASW)
italiana is a national volunteer organization devoted
exclusively to improving the lives of individuals with
Williams Syndrome. It is born in Rome in July 1996. The
address is: c/o Ospedale "Bambin Gesy" ROME - ITALY
Telephone: 06/68592227. E-mail:
aisw.rm@mclink.it
It exists to provide support and assistance to the
families with a child affected by W.S., a network and
family for adults with W.S. and to actively support
research into educational, behavioural, social and
medical aspects of the syndrome.
(Thanks to
Palummo Alberto (palummo@a3800.aravio.finmeccanica.it)
of Alfa Romeo Avio S.A.p.A. for providing this
information).
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Williams Syndrome
Association of Japan (Japan)
Mr Takeshi Unno
2-27-21 Nokata, Nakano-ku Tokyo 165, JAPAN
Tel&Fax 03-3388-7488
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Contact:
Louise Smith (National Coordinator)
513 Pages Road, Bexley, Christchurch 7
Tel: +64 (0)3 3824 100
Kit Crawford (Association President)
10 Golf Road, Titirangi, Auckland
Tel: +64 (0)9 8275 240
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Lisen Julie Mohr
Norsk Forening for WS
Bernhard Herresvel 17
0376 Oslo
Norway
 Email:lisen.mohr@frambu.no
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Williams Syndrome Association of South Africa
PO Box 19113
TECOMA
5214
EAST LONDON
SOUTH AFRICA
Tel. 084 574 2926 / 043 726 1435
Email:
ngnoord@net4u.co.za
Web Site:
http://www.wsasa.co.za/
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A.S.W.
Asociación Sindrome de Williams
C/Orense, 12 2º
28020 Madrid
Phone: 34 1 555 33 17
Fax: 34 1 556 77 80
Email:pherna1@sauce.pntic.mec.es
Other
contacts in Spain:
Madrid
C/ Las Fabricas, 3 - Poligono Industrial
Urtinsa - C.P. 28925 Alcorcon (Madrid)
Telephone: 91 486 01 72
Fax: 91 556 77 80
President: Sharon Curry
Barcelona
C/ Londres, 96 (Ppal.)
C.P. 08036 Barcelona
Telephone: 93 414 39 68
Fax: 93 202 07 40
President: Patricia Fernandez
Soria
C/ Sagunto, 14 - 4º B
C.P. 42001 Soria
Telephone: 975 22 21 67
Fax: 975 22 59 29
President: Marina Parra
Valencia
"ASOCIACION VALENCIANA
SÍNDROME DE WILLIAMS"
Plaza Alquería Nova, 18, 49ª
46014 Valencia-Spain
President: Tomás Monzó González
Tel: +(34) 963-833-547
E-mail:
avsw@wanadoo.es
Web page:
http://perso.wanadoo.es/avsw/
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Mikael Jonsson
Herr Jakobs vag #10
302 56 Halmstad
Sweden
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Enquiries from the United Kingdom of Great
Britain and Northern Ireland should be made to:
John Nelson, Chief Executive
Williams Syndrome Foundation Limited
161, High Street, Tonbridge, Kent TN9 1BX, England.
Telephone : 01732 365152
Fax
: 01732 360178
Home Page:
http://www.williams-syndrome.org.uk/
Email
:
John.nelson-wsfoundation@btinternet.com
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Dansk Forening for Williams
Syndrom (Danish association for Williams Syndrome)
Rolf Andersen
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Kettutie 4 A 14
FIN-00800
Helsinki, Finland
Telephone: 358-9-19140926
Email:
jari-matti.vuorio@helsinki.fi
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Bd. N. Titulescu, Nr. 89-91, Bl.9, Sc. B, Ap. 51,
Sector 1, Bucuresti, Romania
Contact Person (president): Mrs.
Camelia Lazar-Livieratou (mother to Anna Maria - 14
months, WS and wife to Marios)
Phone no: +40.723.553035 - Mobile no
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Web Site:
http://www.williamsjon.okis.ru/
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